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Showing posts from May, 2021

Day 12

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My environmental toxins panel that was repeated 1 week in came back a lot differently than the first initial test we did. For some environmental toxins that I had no value of, I now had moderate levels of. They said it was due to the biofilm in my body breaking and releasing toxins that were locked up within in. Either that's actually true and they've mastered the art of breaking down bacterial defense forms, or the Great Plains Laboratory uses a monkey that spins a wheel to see what value of the data is. There is research that shows elevate glutathione within the blood can destroy biofilm communities (they pump me full of this every day, including after their IVs at home and during the weekend) so I elect to the trust the staff for now. I'm now currently on IV azithromycin and IV rocephin at the same time. For some reason, I'm able to tolerate intravenous antibiotics a lot more than orals, possibly due to how it bypasses the stomach so I don't get any weird initia...

Day 11

 I started getting chest pains from doing Glutathione infusions at home last sunday so I had an EKG done at the clinic to make sure I wasn't having a heart attack - it turns out I was just getting pains from having the IV go in too fast. I made sure they slowed down everything for me at the clinic today. Got the results of my PET scan back, I have reduced blood flow in my cranial nerves, motor strip, and sensory strip. There's evidence that serious damage has been happening in my brain due to Lyme encephalopathy.  Was started on IV Azithromycin 500mg along with the detox drips. Infectious viral panel came out clear, so it's good to hear I don't have any other problems going on with me.  My progressive brain damage is still getting worse. I'm somehow slipping away from this world and it's a really weird feeling. Will hopefully be seeing a difference with the intravenous antibiotics in a month or two.  Symptoms: Brain damage: worse Muscle weakness: worse

Day 8

 Saw Elvis again for a weekly blood draw that also included a viral and infectious disease panel. It was pretty gnarly to see all of the blood drawn from my port at ease - I felt pretty nauseous after and had to take some fluids after losing so much blood. Afterwards, I talked wth the doctor about potentially starting intravenous antibiotics this friday after seeing the results of my PET scan, which probably won't look too good at this point. At the moment I am so fried from all the brain inflammation I feel like I'm not even on earth anymore, yet somehow important in all of this. I think that's called catatonia.  The drips were the same as the last 6 I've gotten: phosphatidylcholine, glutathione, and b vitamins.  I then got my weekly ionic foot bath treatments. which were a lot better of an experience than the colonics (that I skipped, due to the initial pain from the port installation procedure) Symptoms: Muscle weakness: worse Brain damage: worse

Day 7

Met with Elvis to have my port dressings and tape replaced, which reduced the pain a lot for me since the tape they had on the right side of my chest previously was so tight it was exacerbating the soreness from the fresh surgery. We (my mother and I) were taught how to give my port daily heparin injections so a clot doesn’t develop in my port. What was interesting was that initially when my mother asked if we could film him showing us the procedure for later reference, he hesitated a little before agreeing to do it. Maybe he didn’t want to have video evidence of him showing us the procedure if we screw up and I end up in the ER. Standard detox IV fluids were done after. I’m not sure if it really helps or not, I sense that most of the help I will be getting will be from the antibiotic and antifungal treatments that will follow. It’s a bit depressing to have to tell the nurse daily that my symptoms are getting worse every day, but for a tough case like mine I’m not gonna magically be ru...

Day 6

 Woke up at 6:30am this morning to get my port installed. The nurse dealing with me at the medical office clearly was not having a good day today, as she acted stone cold to any of my questions regarding the surgery or my comments about it. They shot me up with Valium as they thought I seemed way too anxious (of course, I have neuro Lyme, this sucks) and then proceeded to knock me out with propofol. Woke up a while later feeling great due to the Valium, however after a few hours the pain set in and I could barely move without my right neck feeling like it was going to explode. I got the same IV treatments as last week, the phosphylacholine and glutathione drops. I don’t really think it works as well to get rid of toxins as much as they say do because I don’t notice much of a difference. They won’t start any antibiotics until they review the SPECT scan of my brain which will be done on Friday. Symptoms are starting to get really bad. My voice is starting to crack a lot and I speak l...

Day 5

 Woke up with extreme cramps from the colonic. Proceeded to get IV glutathione along with more b vitamins. Went to the doctor about the cramps and he ordered a CT scan of my abdomen to make sure there wasn’t a perforation of my colon, otherwise he suggested I maybe fast or eat better to alleviate the symptoms of getting all the water in. Said doing the colonics twice a week will be the best for my recovery. Port will be installed on Monday. Symptoms: Cognitive decline: worse, in fact now the derealization is so bad I don’t even feel alive anymore. Muscle weakness: worse. Hands naturally going into a claw.

Day 4

 Started on an IV glutathione and B vitamins,  was given phosphatidylcholine to help remove some of the toxins from my brain. During the phosphatidylcholine injection I felt a boost of energy for about 10 minutes or so, not sure if a placebo or a weird side effect, but I appreciated the energy nonetheless.  I scheduled to get my PORT catheter installed next monday, which will make the daily injections and blood draws easier.   Had a colon cleanse done for the first time, it was probably the most invasive procedure I've ever had. I couldn't even make it to 30% of the total water they wanted to put on me, I kept on cramping and it felt lie my colon was going to burst. Ended up in the bathroom for 40 minutes after the cleanse was done. Cognitive decline: worse Muscle weakness: worse

Day 3

Was started on intravenous glutathione and B vitamins today, scheduled my appointment to get my chest port installed for easier access to my blood and infusions. Received a positive lyme test through the Immunoscience lab which was positive for lyme antibodies, was told I will be started on Rocephin soon. Current symptoms: Cognitive decline: worse Muscle weakness: worse